Resources

Resources are grouped into the following areas and provided in local and national options: (See example on page 82.)

• Managing behaviors
• Education
• Socialization
• Caregiver support
• Daily care
• Late stage
• Advanced Care Planning

All the worksheets from Centering our Values are listed in this section. You can make multiple copies as new decisions or changes in areas of importance come up over time.

(See example on page 86 and Worksheet 1.1: Building your social support network.)

Resources by categories

Managing Behaviors

NIH’s National Institute on Aging: Alzheimer’s Disease and Related
Dementias
https://www.nia.nih.gov/health/alzheimers

Alzheimer’s Association’s Alzheimer’s and Dementia Caregiver Center
https://www.alz.org/help-support/caregiving

Education

National Institute on Aging
https://www.nia.nih.gov/health/what-are-signs-alzheimers-disease

UIC Dementia Expert App
https://play.google.com/store/apps/details?id=edu.uic.nursing.dg&hl=en_US

Alzheimer’s Association
https://www.alz.org/alzheimers-dementia/stages

SHARE Network Resource Guide
https://sharenetworkchicago.org

Socialization

Social support options online via the Alzheimer’s Association
https://www.alzconnected.org
24/7 Helpline: 1-800-272-3900

Chicago Hyde Park Village healthy aging programming
https://chpv.org

Senior Centers
https://www.cityofchicago.org/city/en/depts./fss/provdrs/senior/svcs/regional_senior_
centers.html

Supporting Healthy Aging Resources & Education (SHARE) Network
https://sharenetworkchicago.org

Gold Mind Arts provides art activities for those with memory loss
Email:
info@goldmindartsandaging.com
312-405-6672

Senior services in the community (adult day health, hired
caregivers)
https://ilaging.illinois.gov
Illinois Department on Aging (Chicago)
312-744-4016

Adult Day Health Programs provide care and socialization daily
773-373-5055 Chicago Commons
800-252-8966 Illinois Department on
Aging helps provide referrals

Next Steps in care (planning for daily care)
https://www.nextstepincare.org

Caregiver Support

Caregiver Counseling & Support Services (Center for New
Horizons)
773-357-4112

Alzheimer’s Association: Caregiving
24/7 Helpline:
1-800-272-3900
https://www.alz.org/help-support/caregiving
(person living with dementia, caregivers, family, etc.)

Classes/Training for Caregivers
https://www.powerfultoolsforcaregivers.org

AARP Caregiving resources
https://www.aarp.org/home-family/caregiving/?cmp=RDRCT-CRGVER_ APR12_012

Illinois Senior Helpline
1 -800-206-1327

SHARE Network Resource Guide
Online:
www.sharenetworkchicago.org/resources
Also in print

Daily Care

Senior services in the community (adult day health, hired
caregivers)
https://ilaging.illinois.gov

Department on Aging
312-744-4016

Alzheimer’s Association 24/7 Helpline
http://www.alz.org
800-272-3900

Adult Day Health Programs provide care and socialization daily
773-373-5055 Chicago Commons
800-252-8966 Illinois Department on
Aging helps provide referrals

Next Step in Care (planning for daily care)
https://www.nextstepincare.org

Late Stage

National Respite Network
703-256-2084

Salvation Army Chicago Community & Family Services
773-382-4601
Palliative care and hospice for loved ones with
advancing dementia and increasing care needs

UChicago Medicine Ingalls Memorial Home Care, palliative and hospice
708-331-0226

VITAS Healthcare
855-791-6375

More about end-of-life decisions and how to honor the wishes of a person
living with Alzheimer’s disease
https://www.alz.org/national/documents/brochure_endoflifedecisions.pdf

End-of-life care for people with dementia
https://www.nia.nih.gov/health/end-life-care-people-dementia

Coping with late-stage dementia
https://www.nia.nih.gov/health/coping-late-stage-alzheimers-disease

Advance Care Planning

Prepare for Your Care
https://prepareforyourcare.org/faq

Five Wishes
https://fivewishes.org/shop/order/product/five-wishes-advance-directive

Illinois Advance Care Plan
Who I trust to make
decisions
https://dph.illinois.gov/topics-services/health-care-regulation/nursing-homes/advance-directives.html

What I want to make the focus of my care when I am at this stage
https://dph.illinois.gov/topics-services/health-care-regulation/nursing-homes/advance-directives.html