Resources
Resources are grouped into the following areas and provided in local and national options: (See example on page 82.)
- Managing behaviors
- Education
- Socialization
- Caregiver support
- Daily care
- Late stage
- Advanced Care Planning
All the worksheets from Centering our Values are listed in this section. You can make multiple copies as new decisions or changes in areas of importance come up over time.
(See example on page 86 and Worksheet 1.1: Building your social support network.)
Resources by categories
Managing Behaviors
NIH’s National Institute on Aging: Alzheimer’s Disease and Related
Dementias
https://www.nia.nih.gov/health/alzheimers
Alzheimer’s Association’s Alzheimer’s and Dementia Caregiver Center
https://www.alz.org/help-support/caregiving
Education
National Institute on Aging
https://www.nia.nih.gov/health/what-are-signs-alzheimers-disease
UIC Dementia Expert App
https://play.google.com/store/apps/details?id=edu.uic.nursing.dg&hl=en_US
Alzheimer’s Association
https://www.alz.org/alzheimers-dementia/stages
SHARE Network Resource Guide
https://sharenetworkchicago.org
Socialization
Social support options online via the Alzheimer’s Association
https://www.alzconnected.org
24/7 Helpline: 1-800-272-3900
Chicago Hyde Park Village healthy aging programming
https://chpv.org
Senior Centers
https://www.cityofchicago.org/city/en/depts./fss/provdrs/senior/svcs/regional_senior_
centers.html
Supporting Healthy Aging Resources & Education (SHARE) Network
https://sharenetworkchicago.org
Gold Mind Arts provides art activities for those with memory loss
Email:
info@goldmindartsandaging.com
312-405-6672
Senior services in the community (adult day health, hired
caregivers)
https://ilaging.illinois.gov
Illinois Department on Aging (Chicago)
312-744-4016
Adult Day Health Programs provide care and socialization daily
773-373-5055 Chicago Commons
800-252-8966 Illinois Department on
Aging helps provide referrals
Next Steps in care (planning for daily care)
https://www.nextstepincare.org
Caregiver Support
Caregiver Counseling & Support Services (Center for New
Horizons)
773-357-4112
Alzheimer’s Association: Caregiving
24/7 Helpline:
1-800-272-3900
https://www.alz.org/help-support/caregiving
(person living with dementia, caregivers, family, etc.)
Classes/Training for Caregivers
https://www.powerfultoolsforcaregivers.org
AARP Caregiving resources
https://www.aarp.org/home-family/caregiving/?cmp=RDRCT-CRGVER_ APR12_012
Illinois Senior Helpline
1 -800-206-1327
SHARE Network Resource Guide
Online:
www.sharenetworkchicago.org/resources
Also in print
Daily Care
Senior services in the community (adult day health, hired
caregivers)
https://ilaging.illinois.gov
Department on Aging
312-744-4016
Alzheimer’s Association 24/7 Helpline
http://www.alz.org
800-272-3900
Adult Day Health Programs provide care and socialization daily
773-373-5055 Chicago Commons
800-252-8966 Illinois Department on
Aging helps provide referrals
Next Step in Care (planning for daily care)
https://www.nextstepincare.org
Late Stage
National Respite Network
703-256-2084
Salvation Army Chicago Community & Family Services
773-382-4601
Palliative care and hospice for loved ones with
advancing dementia and increasing care needs
UChicago Medicine Ingalls Memorial Home Care, palliative and hospice
708-331-0226
VITAS Healthcare
855-791-6375
More about end-of-life decisions and how to honor the wishes of a person
living with Alzheimer’s disease
https://www.alz.org/national/documents/brochure_endoflifedecisions.pdf
End-of-life care for people with dementia
https://www.nia.nih.gov/health/end-life-care-people-dementia
Coping with late-stage dementia
https://www.nia.nih.gov/health/coping-late-stage-alzheimers-disease
Advance Care Planning
Prepare for Your Care
https://prepareforyourcare.org/faq
Five Wishes
https://fivewishes.org/shop/order/product/five-wishes-advance-directive
Illinois Advance Care Plan
Who I trust to make
decisions
https://dph.illinois.gov/topics-services/health-care-regulation/nursing-homes/advance-directives.html
What I want to make the focus of my care when I am at this stage
https://dph.illinois.gov/topics-services/health-care-regulation/nursing-homes/advance-directives.html